[0 Comments]
Maria posted on
January 20th, 2012 | 09:51 PM

 

The mission of the Save Babies Through Screening Foundation is to improve the lives of children and their families, by working to prevent disabilities and death resulting from disorders detectable through newborn screening tests.

The Foundation’s goal is to see that every baby born in the United States is screened successfully, effectively, and comprehensively.

Save Babies Through Screening Foundation educates parents, pediatric healthcare providers, and policy makers about available comprehensive newborn screening, the importance of obtaining positive or other test results requiring follow-up actions within 5 days of birth, and the importance of prompt confirmatory testing and treatment/management when needed.

WSAID is very pleased to announce this partnership. We are sure this collaboration will make a significant and positive impact in the lives of many babies and families.   Please visit the foundation’s website for more information on newborn screening:

http://www.savebabies.org/

 

 

[3 Comments]
Maria posted on
January 12th, 2012 | 07:26 PM

 

 

 

 

 

 

 

 

 

 

 

5:30 pm… End of the year…

My last email for the day comes with an ‘URGENT” message from a friend looking for a laboratory to run a complete newborn screening on a baby that went into respiratory arrest.  His message: “Please help me save his life” will be engraved in my mind and my heart until the day I die.

Many babies are screened at birth in developed countries for metabolic and endocrine disorders. This baby was not part of the fortunate group.  The baby is now in the Intensive Care Unit in a hospital in South America keeping doctors busy discussing what could be wrong with him. Many babies are in the same situation not only in South America but also in Central America, most of Africa and some countries in Asia. Some of them require something simple to survive, an inexpensive treatment, a change in diet.  Others will require medical and psychological treatment for life. Those who could have been screened and are not, could face neurological problems and disability for life. They could have developed normal but they were not diagnosed early.

New parents are often unaware that these disorders are inherited and that all it would take for them to save their baby’s lives is a drop of blood.

This is the situation all over the world but it is worse in developing countries. Laboratories struggle everyday to meet the needs of their patients while reagents are hard to obtain. In other cases, it takes several weeks for reagents to reach the laboratories and when they do, they are past their expiration date.  Many country regulations allow for only one distributor of these products and when the distributor fails to meet the laboratory needs, the laboratory is left empty handed and what is worse, newborns are not screened. Lives are lost or neurological problems appear.

WSAID’s most important New Year’s Resolution is to help those babies and the laboratories that are trying to contribute to Newborn Screening. Help us help them !!!!  The laboratories need supplies, reagents, technical expertise and instrumentation. The babies need a blood test. Their parents need support and someone to talk to.

We need your help to save their lives that are just beginning.

Helping is easy:

Send us an email and tell us your story or how you would like to contribute:

info@wsaid.org

We will help you make a difference in the lives of these families. 

 

 

 

[22 Comments]
Maria posted on
August 11th, 2011 | 07:27 PM

We just returned from hosting the Tropical Disease Forum in Santa Marta in collaboration with our partner organization Tropical Health Foundation.  Beautiful location full of contrast and a reminder of why we want to contribute to decreasing tropical diseases in developing countries.  The idea of hosting the forum in Santa Marta was to give the local economy a bit of help after the Caribbean coast was devastated by floods in 2010.  We also tried to help the local scientists and physicians as they would benefit from not having to spend extra money traveling somewhere else within Colombia.

We are very glad we hosted the forum in Santa Marta.  It was pretty evident that the effects of the floods left a big gap in the economy of the region and thousands displaced from their homes.  Thanks to the contributions from our sponsors we were able to offer complimentary registration to 20 participants from the Universidad del Magdalena, 12 from the Universidad de Cordoba, 10  from the Universidad de Antioquia, 10 from the Hospital Universitario del Valle, a few public health participants and we were able to bring excellent speakers to the forum.

Needless to say, the infrastructure in the region is still precarious. People in Santa Marta have to work very hard everyday to make a living but perhaps it is the lack of infrastructure what maintains pristine some of the beaches in the area.

We experienced everything visitors to tropical regions experience: long flights, delays in scheduled, delayed luggage and rain but we also experienced the beauty of the beach, the many shades of blue of the ocean and the sky, tropical music,  food and weather.

We remained healthy during the trip, we sprayed insect repellent every day and did not fall prey of dengue or malaria or any other infection thanks to bottled water.  It was explained to us that Santa Marta has a good water treatment plant but the pipes and plumbing throughout the city are old and not in good shape and therefore drinking water is still an issue.  With all the flooding, I can see how the pipes would be easily contaminated.

The first day of the forum, we experienced  a 30 minute delay because the auditorium was not ready. It was not the University’s fault. A rodent decided to die in the air conditioning duct and needless to say, it would have been unhealthy and unpleasant to host the talks in the main auditorium.

We moved to a smaller auditorium were communication was easier. The air conditioning in the room was excellent and we were very grateful we had it because it is extremely hot this time of the year. I am a firm believer that things happen for a reason even if it is not apparent to us at first and I think that the smaller auditorium worked even better than the larger one.

We hosted the talks without incidents and it was amazing to see how engaged our audience was.  We were also able to recognize Dr. Ivan D. Velez and the Program for the Study and Control of Tropical Diseases for their dedication and contributions over 25 years to research in tropical diseases.

Our keynote speaker during the first day, Dr. Lisa Brumble from the Mayo Clinic, delivered a remarkable comprehensive lecture regarding infectious diseases and natural disasters and shared her experience in Haiti after the earthquake that recently devastated the island.  We had a total of 16 speakers during the two day forum and each one of their lectures was excellent and we all learned a lot from their presentations. For some of us, it was an eye opener. For some others, it was a reminder of all the work that needs to be done.

Our coffee breaks were delightfully sweet. We had Colombian coffee and the ladies that served all of us, brought it in trays holding individual cups of hot coffee with a smile on their faces and personalized attention.

Going out to lunch was challenging because the local restaurants are not equipped to handle large crowds and we had about 20-25 people in our party each time.  What impressed me the most was that even though they did not have the infrastructure to do it, they really tried to provide a good service.  Their staff had a smile on their faces and the table they assigned to our big party was impeccable. If you are in the area and want to experience good local food, try Mil Carnes and Muelle 8. It is worth it. The food was delicious.

Our hotels were also very nice. The GHL Costa Azul in Santa Marta treated us like we were part of their family. The Irotama hosted some of our speakers and participants and they also experienced excellent service and attention.  The Park Hotel was excellent and their personalized attention really made a difference.

The second day of the forum, it rained at lunch time. Our 2 hour lunch break turned into a 4 hour ordeal trying not to get stuck in the flooded streets downtown.  In a way, we experienced a sample of what the local residents experience every day. Imagine telling your boss that you are going to lunch and not being able to get back to your job until two hours later? Imagine trying to pick up your children from daycare or school… only to find flooded streets everywhere.  What a difficult life.  The streets have no drains. There is no place for rain water to go.  It seems the solution would be so simple but it would require money  and there are other problems and priorities that the city needs to take care of.

As we sat in the van looking outside, we witnessed what seemed to be the never ending flood.  People in Santa Marta are the nicest people you will ever meet. They keep their smiles while holding their shoes in their hands wading water up to their knees and waists in some places.  Children, adults, elderly… everybody was affected but they all managed to go on with their  lives with smiles on their faces.

By the time we arrived at the University, we were surprised that the crowd was still waiting for us. Under these circumstances, in other parts of the world, there would have been no audience left but the people from Santa Marta and the region really want to make a difference in their lives through education.  Another interesting observation, they really admire scientists and they recognize them in public. World known, Colombian Dr. Manuel E. Patarroyo was the speaker in the afternoon and everybody welcomed him and wanted his autograph. Dr. Patarroyo delivered an outstanding lecture on malaria vaccine development.

We continued the forum, and around 6:30 pm when it was already dark, power went out.  In an amazing display of human perseverance,  the audience started turning on their cellphones and we continued with the light provided by each one of the screens and the light from one of the speaker’s flashlight until the power returned.

No one left during the power outage. Not a single soul. Remarkable will to learn against all adversity.

We learned valuable lessons during this experience. The most valuable of all perhaps to stay with us forever is that the human spirit is capable of overcoming all adversity and that a little bit of help goes a long way to make a difference in many lives. We also learned that hosting scientific events in developing regions of the world with precarious infrastructure is not only possible but more importantly beneficial to many and extremely rewarding.

Thanks to all who participated and traveled from other countries and other regions of Colombia to attend the forum. Thanks to our sponsors, hotels, the Universidad del Magdalena and other institutions that participated. We hope that you enjoyed the lectures,  landscape and human interactions as much as we did.  It was worth the effort.

THANK YOU!!!!!

For more information about our projects and activities, please email us with your contact information at: info@wsaid.org

 

 

[8 Comments]
Maria posted on
July 14th, 2011 | 01:26 AM

It started as an idea… just like all ideas….

His idea: to educate people about disease in a very different and unique way. His thought: Insects as Protagonists.

Another head… a different idea…

His idea: to capture the beauty of nature that we take for granted… His thought: to show the world this beauty through his lense. 

Their names: Alejandro Valencia-Tobón and Jean Claude Ardila. Young, talented, smart and unique… just like their ideas. Alejandro photographs insects through their life cycle and Jean Claude focuses on nature, people and landscapes. Their work continues to be on display at the Museum of Science and History (MOSH) until November 13 as part of our partnership to educate families in Florida about the dangers of mosquito transmitted diseases to humans, pets and other animals.

Florida has seen an increase in mosquito borne illnesses such as malaria and dengue in the last three years.  Once erradicated in the state, their presence is now evident.  While most of the cases have been attributed to international travel, the presence of a few local infections in residents that have not left the country brings attention to this issue. In an effort to educate residents and visitors to the state WSAID and MOSH partnered to bring to life: “Florida’s Deadliest Insects” currently on display at the MOSH.

Malaria and dengue continue to be considered “diseases of the poor” or “exclusive to third world countries”. Is it really true?  Globalization brings lots of good things along with a few pesky parasites and viruses that catch a ride with humans and settle down where the environment favors them. 

If you are playing outside, wear long sleeves and pants, use insect repellent.  Make sure your kids and pets are protected. 

Send us an email at: info@wsaid.org for more information on how to protect your loved ones and pets from mosquito bites.  

Alejandro and Jean Claude… thanks for your contributions. You have made a difference !!!

[13 Comments]
admin posted on
July 5th, 2011 | 11:02 PM

As part of our efforts to educate communities around the world about the dangers of mosquito transmitted diseases and due to the increases in dengue and malaria in Florida due to travel as well as some local transmission we decided to develop a program to educate children and adults about these diseases.

We hosted three workshops at the MOSH during our Florida’s Deadliest Insect exhibit. The workshops were possible thanks to our sponsors: MOSH, the PECET, FMEL, Duval County Mosquito Control, Tropical Health Foundation, Hudson,Coleman repellents, Jax4kids and Polyform.  THANK YOU !!!

Please visit our partners/sponsors page for more information about them and their products.

In four days, we were able to teach more than 100 kids and their parents visiting the MOSH and at summer camps how to protect themselves from mosquito bites.  Thanks to Edwin Patiño and Sandra Guevara, who provided their advise and guidance for the workshops and donated their time to this great cause.

The workshops were hosted at MOSH and also at TUTOR TIME LEARNING CENTER. We distributed DEET free mosquito repellent wipes and pocket-size spray to participating parents as well as information regarding how to protect their families against mosquito bites thanks to Coleman repellents and the Duval County Mosquito Control District.  Coupons for discounts on mosquito repellent were also distributed to visitors thanks to Coleman repellents.  The bilingual photo exhibit on mosquito life cycle and habitats at the MOSH is an ongoing event at the MOSH community conference center.  It will be on display until November 13, 2011.

The workshops had such success that we have decided to host them again this fall.

If you are interested in hosting a workshop, please let us know by sending us an email to: info@wsaid.org with the subject: CLAY WORKSHOP.

 

 

 

[16 Comments]
Maria posted on
May 30th, 2011 | 05:13 PM

Come and join us at the Museum of Science & History (MOSH) in downtown Jacksonville for this exciting event. We will host an exhibit including mosquitoes life cycle, their habitats, diseases they transmit and how to protect your families.  Experts on mosquito borne illnesses will talk about the diseases transmitted by mosquitoes in Florida.

We will also have workshops for children. They will learn to make clay models of these mosquitoes and many other animals. For more details or to register for the workshops (limited seating available), please send us an email at : mpcorena@wsaid.org

Looking forward to meeting you at MOSH.

[6 Comments]
Maria posted on
March 26th, 2011 | 11:06 PM

 

Registration is easy. Register and pay online by using our EVENTS registration form →

 We are very enthusiastic about this event. This forum/symposium will provide an opportunity to exchange knowledge, experiences and novel technology and protocols to identify, diagnose, treat and fight tropical diseases. The forum is a great opportunity to present your research and clinical experiences if your work has taken place in a tropical country. Please email us if you are interested to participate as a sponsor or if you would like to attend: mpcorena@wsaid.org

Registration OPENED April 1, 2011. Limited to first 200 registrations.  Register before June 1, 2011 to take advantage of the discounted rates (see registration form for special rates). The forum will take place at the Universidad del Magdalena in Santa Marta Colombia.

Click on the following link for a printer-friendly version of the final agenda  FINALAGENDA05-10-2011 

[6 Comments]
Maria posted on
February 9th, 2011 | 03:54 AM

Another beautiful day of work today. Bright sun, crisp air, not a drop of rain. We sorted out boxes, packed more supplies and measured them to be shipped. It was such a rewarding experience to finally be able to put numbers on our efforts. It was amazing to pack supplies to help families across the ocean start their lives again. We were able to box a little bit over half a ton of supplies including baby supplies and clothes, children and adult clothes, bed comforters, sheets, blankets, children’s toys, shoes, toilet paper, cleaning supplies, food and even medical and laboratory supplies. It felt good to help and know that these families will receive the help they need. Thanks again to all who helped. We couldn’t do it without you.
However, we are not done. We have just started.

[2 Comments]
Maria posted on
February 1st, 2011 | 08:56 PM

Reading a book is for some people as exciting as watching a movie. Reading and watching are indeed times we spend in solitude with our own brain. It is a rare event. Life comes to us very quickly with new situations, places to go, people to meet and we rarely have time to sit quietly with ourselves. Our brain generates new connections every time it becomes stimulated visually and we use regions of the brain we would otherwise ignore when we imagine. We imagine when we read, we create characters faces, gestures and situations. We can imagine times of the day, night, emotions, laughter, sadness, fear. We can add personalities to these characters and visualize the places they visit or the settings where each story takes place just by using our imagination. Movies are similar but instead of re-creating situations and people in our brain, we see them and we start to make intentional or unintentional connections to our own lives and situations. The vast majority of movies are creations of someone’s brain. In an effort to provide a minute of time with our brains, we have created this video. It is a combination of images that perhaps will help you gain perspective on your own life. You are free to imagine the lives of the people in this video and you are also free to make your own conclusions about their situation and their needs and then you can have a few minutes to imagine what life would be like for you if you were living those lives. You are also free to decide if you would like to help them.

Click on this link to watch the video:

The water they drink…. the water you drink

[4 Comments]
Maria posted on
January 23rd, 2011 | 06:12 PM

Yesterday we sorted out donations from the fundraiser event hosted on January 16th. Thanks to ASOCOL, Tropical Health Foundation, El Molino Rojo Restaurant, Uniendo Mundos, Efectos Secundarios, Caracol radio and the generosity of those who donated their time and effort we have been able to collect about 300 pounds of clothes and supplies and enough money to buy at least 30,000 water purification tablets. The clothes, supplies and tablets will help many families in Palo de Agua. They will contribute to the health of their children and a better future for the community but they are still not enough to help all of them. There are over 500 families living in dirty water up to their knees, sharing little patches of dry land with their pigs and chickens inside their homes. These families need our help.
We started sorting donations mid-morning. The wind was blowing, the sky was blue and the sun was shining. It felt like spring. With the end of 2010 and the beginning of 2011 so close to each other life seems to go faster these days and we seem to move in a fine line between our past and our present. Today for the first time I noticed all the naked nests on the trees. Trees changed colors and in the blink of an eye went from green to reddish to gray and now the nests we see between the bare branches point exactly at the location previously chosen by squirrels as the safest and most conspicuous place to raise a family. Parenthood does not come with an instruction manual and we all do what we think is best for our families. But even among the bare branches nature seems to find a way to remind us of a new beginning.
I came across a blog about Palo de Agua written in 2007 after heavy rains. Somebody wrote among photographs showing poverty and flooded land the following phrase: “I do not want to think we are invisible”. Just as the squirrel nests are not invisible anymore, I can honestly say that what was once invisible is now seen by many.
You are not invisible anymore.